The resources on this page are constantly growing. Please send any recommendations for inclusion to firstname.lastname@example.org
Chu, Lily, Fuentes, Lynn, Marshall, Olena, Mirin, Art. Accommodations for ME/CFS College Students (useful in other contexts, too)
Fuentes, Lynn. The Chronic Illness Initiative
Supporting College Students with Chronic Illness Needs at DePaul University.
Fuentes, Lynn. Crossing the Bridge
An essay on when to intervene by Lynn Holaday Fuentes.
Bernhard, Toni. When Our Chronically Ill Bodies Say “Rest,” Why Don't We?
Shifke, Caroline https://www.huffpost.com/entry/chronic-illness-no-one-knows-whats-wrong_n_5efe1653c5b6ca97091b054a
Changing Relationships, Changing Lives http://caregiveraction.org/changing-relationships-changing-lives
How a Chronic Illness Can Impact a Relationship http://itsnotjustlyme.com/lyme-can-impact-relationship/
Love, Anger and Guilt: Coping With a Child's Chronic Illness https://www.nytimes.com/2001/06/26/health/love-anger-and-guilt-coping-with-a-child-s-chronic-illness.html
Maintaining a Healthy Relationship (with someone with mental illness) https://www.nami.org/Find-Support/Family-Members-and-Caregivers/Maintaining-a-Healthy-Relationship
For Providers - Advice for physicians seeing ME/CFS patients
Chronically Capable. An organization that helps people with chronic illness find flexible work. https://www.wearecapable.org/
Please forward suggested links to email@example.com
Planning and Practical Resources
Spirituality and Growth
Literature and Film
The Children Act with Emma Thompson. Movie (book by Ian McEwan): A 17 year old Jehovah's Witness wants to refuse a life-saving blood transfusion.
Coaching and Healing:A look at connecting the biological and the social
Lynn's Integral Life module - the first six 6-minute clip is on the quadrants. You will need to belong to integrallife.com to see the subsequent clips.
Berne, Katrina. Running on Empty
Bernhard, Toni. How to Be Sick: A Buddhist-Inspired Guide for the Chronically Ill and Their Caregivers
Brownlee, Shannon. Overtreated: Why Medicine is Making Us Sicker and Poorer (economic book of the year in 2008).Chodrin, Pema. When Things Fall Apart
Donohue, Paul J. Ph.D. and Mary E. Sigel Ph.D. Sick and Tired of Being Sick and Tired: Living with Invisible Chronic Illness
Dossey, Barbara. Nurse Coaching
Edwards, Laurie: In the Kingdom of the Sick: A Social History of Chronic Illness in America and Life Disrupted: Getting Real About Chronic Illness in Your Twenties and Thirties
Feldman, Lynne. Integral Healing
Fennell, Pat. The Chronic Illness Workbook: Strategies and Solutions for Taking Back Your Life
Foster, Jeff. Falling in Love with Where You Are.
Documentary: "Out of My Head" chronic migraine.
Illness in Literature and Film
(a few suggestions – find your own and add to our list)
Books (fiction, autobiography)